Jean-Jacques Kiladjian, MD, PhD from Saint-Louis Hospital & Paris Diderot University, Paris, France discusses the impact of patients registries on research and the patient community. Dr Kiladjian gives the example of Dr Martin Griesshammer, MD, PhD who presented data from a patient registry of pregnant women with polycythemia vera (PV), with the data consequently helping in the management of pregnancy in these patients. Recorded at the European Hematology Association (EHA) 2016 Annual Congress in Copenhagen, Denmark.
The importance of patient registries
